About Sarah

Hi! My name is Sarah and I have set up Invis-Ability!

 

me
Image Description: Picture of me with my glasses on looking into the camera.

Some information about me, just in case you were interested!

My name is Sarah.

I am 24 years old.

Originally from just outside Brighton in a little village in the United Kingdom.

I went to the University of Leeds and studied Politics, after my degree finished I stayed in Leeds, as it is a great place!

Ollie
Image Description: my cat Ollie asleep on a bed with his paws crossed over!

I have a beautiful ginger cat called Ollie, who I sometimes call ‘Le Tigre’.

I have a passion for politics and current events, and I am a proud feminist!

I love reading, writing and watching terrible shows on Netflix.

I also have a huge love of style and make-up, and spend a lot of time and money browsing for new trends and watching YouTube make up tutorials (much to my family and boyfriend’s great annoyance!).

I am also a part of the Scope for Change Programme, set up by the UK charity Scope, which teaches campaigning skills for people aged 18-25.

I am planning on starting an MA in Disability Studies at the University of Leeds in September.

13608022_10157094977950357_490263682_n
Image Description:  Group picture of the Scope for Change squad at our training weekend in April. We are all laughing and having fun!

 

My impairment

Psoriatic Arthritis 

When I was 19 I was diagnosed with Psoriatic Arthritis, following this diagnosis I also experience Anxiety and Depression.

Psoriatic arthritis is connected to the skin condition Psoriasis, which I also have. It is an auto-immune disease, which means that basically my immune system is going into overdrive and causing inflammation in the joints.

This happened as a result of getting Typhoid Fever whilst i was travelling in Peru, and my diagnosis was made in my first term at university.

My condition causes inflamed stiff joints, which swell and become difficult to move. I get this in my back, neck, shoulders, hips, knees and feet. I experience chronic pain every day and all suffer from fatigue.

My condition progressed rapidly and severely, and affects my mobility and various aspects of my life. School. Work. Social life.

 It fluctuates, when my condition is stable on a good day I can live independently, however on a bad day I cannot move at all. Sometimes I walk with a limp, if my hip is particularly bad.

For further information about Arthritis or Psoriatic Arthritis, Arthritis Research have excellent advice and support on their website.

Functional Neurological Disorder

In the past 9 Months I also experienced a number of head injuries, which has triggered what the doctors believe is a Functional Neurological Disorder.

This is obviously a relatively new thing, which I am currently undergoing diagnosis and treatment for, however it has hugely affected my life.

I experience memory loss, disorientation and confusion, seizures (Absence and tonic clonic), migraines, and cognitive problems. I also have problems with noise and light which can cause sensory overload.

It is unsure whether the symptoms of FND are going to be permanent, I am hoping that treatment will work. Although as many of you will know one illness can often trigger another.

If you would like to know more about FND, I have been shown this website called FND Hope which is really excellent.

I will obviously be talking about both of these impairments in my blog posts, so thought it would be useful to explain them briefly and will keep updating my progress with each of them.